Authorship and Production Credits 

This educational activity became a reality because of the dedicated and generous support of the following authors and eNURSING llc’s staff members who provided technical support and coordination for the project. We also acknowledge support for the development and testing of the Internet-based Education on End-of-Life Issues for Mental Health Providers that was provided by Grant Numbers R43 MH070226 and R44 MH070226 from the National Institutes of Health, National Institute of Mental Health. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the National Institute of Mental Health. 

Authors

John R. Anderson, PhD, is the co-principal investigator of the Internet-based Education on End-of-Life Issues for Mental Health Providers. Dr. Anderson is the technical content editor of all modules and co-author of three modules: Overview of End-of-Life Issues for the Mental Health Provider, Religious and Spiritual Issues at the End of Life, and Assessment and Treatment of Psychological Distress Near the End of Life. Dr. Anderson is the Senior Director of the American Psychological Association (APA) Office on AIDS, the Director of the APA HIV Office for Psychology Education (HOPE) Program, and the Director of the APA Behavioral and Social Science Volunteer (BSSV) Program. Dr. Anderson has been responsible for the development and implementation of a variety of activities at APA associated with practice, research, education, and policy pertaining to the end of life. These activities have been carried out in collaboration with three expert panels: (1) the APA Working Group on Assisted Suicide and End-of-Life Decisions; (2) the Ad Hoc Committee on End-of-Life Issues; and (3) the Children and Adolescent Task Force of the Ad Hoc Committee on End-of-Life Issues. Dr. Anderson has authored numerous peer-reviewed articles and training curricula on the mental health and psychosocial aspects of HIV/AIDS. His recent book, Ethics in HIV-Related Psychotherapy: Clinical Decision-Making in Complex Cases, provides mental health providers with a practical guide for dealing with complex moral and legal dilemmas posed by clients living with HIV/AIDS. Dr. Anderson has delivered over 100 presentations and workshops on HIV/AIDS and end-of-life care at professional meetings and conferences during the past 15 years. In addition to his activities at APA, Dr. Anderson has conducted a private mental health services practice in Washington, D.C., since 1986. In his practice, he specializes in individual, couple, family, and hypnosis therapies for people living with chronic and terminal illnesses. Dr. Anderson received his Ph.D. in clinical psychology from the University of Kansas in 1988.  

Peter Ditto, PhD, is co-author of Advance Care Planning at the End of Life. He is Professor of Social Ecology in the Department of Psychology and Social Behavior at the University of California, Irvine. He received his Ph.D. in 1986 from Princeton University. Trained as an experimental social psychologist, Dr. Ditto's research lies at the interface of social and health psychology, much of it applying concepts and methods borrowed from basic research in social cognition to understand health-related decision making and behavior. Over the last 10 years, Dr. Ditto has conducted a series of studies examining key psychological assumptions underlying the effective use of advance medical directives. This work has resulted in numerous publications in both psychological and medical journals and has been presented at invited addresses to the American Psychological Association and the Western Psychological Association. Dr. Ditto was one of the few psychologists invited to participate in the1993 Squam Lake conference convened to establish a national agenda for research on advance care planning and is a member of the Advisory Panel for APA's Ad Hoc Committee on End-of-Life Issues.  

William E. Haley, PhD, is author of Family Caregiving Issues at the End-of-Life and co-author of Overview of End-of-Life Issues for the Mental Health Provider. He is a psychologist, researcher, and teacher who has been concerned with the problems of family caregivers for over 20 years.  Dr. Haley completed his PhD in clinical psychology at the University of Massachusetts-Amherst. Dr. Haley’s research interests include measurement of the psychological, social, and physical health problems experienced by family caregivers, use of stress theories to understand caregiving, and the application of research to improve interventions to assist these families.  He specializes in gerontology and has over 100 scholarly publications in journals, including Journal of the American Geriatrics Society, Neurology, The Gerontologist, and Psychology and Aging. Dr. Haley is a former President of the Section on Clinical Geropsychology of the American Psychological Association, and a past Chair of the Behavioral and Social Sciences Section of the Gerontological Society of America.  He serves on the editorial boards of a number of scholarly journals, including Research on Aging, and Aging and Mental Health:  An International Journal.  He is also Associate Editor of the journal Psychology and Aging, and is Chair-elect of the Behavioral and Social Sciences section of the Gerontological Society of America.  He is currently a professor in the School of Aging Studies at the University of South Florida, and holds joint appointments in the Department of Psychology and the Division of Geriatric Medicine. Dr. Haley also serves on the Advisory Board for this project. 

Susan E. Hickman, PhD, co-author of Advance Care Planning at the End of Life, is Associate Professor and Research Scientist in the School of Nursing, a Senior Scholar with the Center for Ethics in Health Care, and a Co-chair on the Institutional Review Board at Oregon Health and Science University.  She earned her doctorate in Psychology from the University of Kansas, followed by a postdoctoral fellowship in geriatrics at the Portland Veterans Affairs Hospital and a postgraduate certificate in bioethics from the University of Washington.  She is a consultant to the Oregon Physician Orders for Life-Sustaining Treatment (POLST) Task  Force and Chair of the Research Subcommittee for the National POLST Paradigm Task Force.  Her research focuses on research ethics and end-of-life care with a special emphasis on long-term care. 

Julia Kasl-Godley, PhD, co-author of Teamwork in End-of-Life Care, is staff psychologist, VA Hospice and Palliative Care Center, Palo Alto, CA, where she provides clinical services, consultation, and supervision as part of an interprofessional treatment team.  She has worked on a variety of interdisciplinary care teams and is an administrator in the Interprofessional Palliative Care Fellowship program.  She received her PhD in psychology from the University of Southern California, and has received numerous awards for her scholarship, leadership, and service.  She has published journal articles and book chapters on later-life treatment, stereotypes, sexuality, and mood disorders, and has presented on models of interprofessional treatment.  Dr. Kasl-Godley has conducted research on dementia management and Alzheimer’s caregiving and has presented widely on aging and end of life issues. 

Renee S. Katz, PhD, is co-author of Overview of End-of-Life Issues.  She is a Licensed Clinical Psychologist, Licensed Clinical Social Worker and Fellow in Thanatology:  Death, Dying and Bereavement in private practice in Seattle.  For over 25 years she has worked with the dying, bereft, and those living with life-limiting illness.  Dr. Katz consults, teaches, and trains locally and nationally in the areas of grief and bereavement, gerontology, countertransference, and the addictions.  She received the American Cancer Society Leadership Award and the American Cancer Society Division Award for Outstanding Program Development.  Most recently, the Washington State Psychological Association (WSPA) presented its Social Issues Award to Dr. Katz in recognition of her outstanding application of psychology in the public interest in the area of end-of-life care.  Dr. Katz is co-chair of the WSPA End-of-Life Task Force and chairs the Ethics and Professional Standards Committee of the Association of Death Education and Counseling (ADEC). The author of many articles and chapters in books, she is co-editor of two books:  Countertransference and Older Clients (SAGE Publications, l990) and When Professionals Weep:  Emotional and Countertransference Responses in End-of-Life Care (Routledge/Taylor & Francis, 2006). 

Donna Kwilosz, PhD, is co-author of Teamwork in End-of-Life Care. She received her PhD in psychology at Johns Hopkins University in 1984. Dr. Kwilosz is staff psychologist, Navitas Cancer Rehabilitation Centers, Albuquerque, NM.   Specializing in behavioral medicine and psychological management of pain, she received training at the National Institutes of Health and University Hospitals of Cleveland.  She joined Mt. Sinai Medical Center in Cleveland where she became Chief of Behavioral Medicine, and began more extensive work in psychosocial oncology, receiving additional training as part of the Network Project at Memorial Sloan-Kettering Cancer Center. She joined the Ireland Cancer Center at University Hospitals of Cleveland in 1998 as Associate Director, Psychosocial Oncology. She was also Clinical Instructor in Medicine and Psychiatry at Case Western University, and was involved in education and training of professional staff. As a medical psychologist, she brings experience in helping patients and families adjust to changes and disruptions that occur with diagnosis and treatment of chronic and life-threatening illnesses. She is committed to developing and incorporating an interdisciplinary model integrating psychological, psychosocial and supportive care into the total care of patients with cancer and their families. It is from this approach that she works with the Safe Conduct Team, providing clinical consultation, supervision, and direct care for patients and their families. Dr. Kwilosz also serves on the Advisory Board for this project. 

Martha S. Mihaly, PhD, is co-author of Religious and Spiritual Issues at the End of Life and served as principal investigator for this project.  She has worked in the development of standards for curriculum in continuing education for psychologists and also in the identification and development of end-of-life practice competencies for nursing students.  Dr. Mihaly previously worked as senior ethics investigator for the APA Office of Ethics and has written about ethics for The Maryland Psychologist and Ethics and Behavior.  Her ethics research is on multiple relationships between client and clinician.  Dr. Mihaly received her PhD in General Psychology in 2006. 

Robert A. Neimeyer, PhD, is author of Grief and Bereavement. He is Professor and Director of Psychotherapy Research at the University of Memphis, where he also maintains an active clinical practice. Since completing his doctoral training at the University of Nebraska in 1982, he has published 20 books, including Meaning Reconstruction and the Experience of Loss, and Lessons of Loss: A Guide to Coping, and serves as Editor of the journal Death Studies. The author of over 300 articles and book chapters, he is currently working to advance a more adequate theory of grieving as a meaning-making process, both in his published work and through his frequent professional workshops for national and international audiences.  Neimeyer is a member of the American Psychological Association’s Task Force on End-of-Life Issues, and has served as president of the Association for Death Education and Counseling.  In recognition of his scholarly contributions, he has been granted the Eminent Faculty Award by the University of Memphis, made a fellow of the Clinical Psychology Division of the American Psychological Association, and given the Research Recognition Award by the Association for Death Education and Counseling. Dr. Neimeyer serves on the Advisory Board for this project.   

Steven D. Passik, PhD, is author of Assessment and Treatment of Pain at the End of Life. Dr Passik received his doctorate in clinical psychology from the New School for Social Research, New York, NY, and was a chief fellow, Psychiatry Service at Memorial Sloan-Kettering Cancer Center in New York. He is director of symptom management and palliative care at the Markey Cancer Center of the University of Kentucky in Lexington and associate professor of medicine and behavioral sciences at the University of Kentucky. In 1999, Dr Passik was a faculty scholar for the SOROS Foundation’s Project on Death in America, and in 1992-1993 he received a National Research Service Award from the National Cancer Institute.  Dr Passik has served on the editorial board of the Journal of Pain and Symptom Management and has been a reviewer for the Journal of Pharmaceutical Care in Pain and Symptom Control, Journal of Pain and Symptom Management, Psycho-Oncology, Agency for Health Care Policy and Research Cancer Pain Guidelines, Cancer Investigation, and Oncology. Dr. Passik has served as the president of the Indiana Cancer and AIDS Pain Initiative and as editor-in-chief of the National Cancer Institute’s PDQ Supportive Care Editorial Board. He is the author of more than 62 journal articles, 33 book chapters, and 50 abstracts. Dr. Passik also served on the Advisory Board for this project. 

David K. Payne, PhD, is author of Diagnosis and Treatment of Cognitive Changes at the End of Life. Currently, he is Instructor of Psychology, Wallace Community College, Dothan, Alabama. Up until recently he worked as a Clinical Assistant Psychologist at Memorial Sloan-Kettering Cancer Center, New York, NY and as Assistant Professor of Psychology in Psychiatry at the Weill Medical College of Cornell University, New York, NY. He holds both a master's and doctorate degree in clinical psychology from the University of Louisville.  Dr. Payne has spent the past 13 years providing clinical care to patients who are facing end-of-life issues as well as providing supervision and training to post-graduate psychologists and psychiatrists in the assessment and treatment of psychological distress related to life-threatening illness. He has presented and lectured extensively on cancer, pain, palliative care, coping with death and dying, and the use of integrative medicine techniques with patients facing chronic or life-threatening illnesses. Dr. Payne also serves on the Advisory Board for this project. 

Barry Rosenfeld, PhD, is author of Assessment and Treatment of Psychological Distress Near the End of Life. He is a member of the department of psychology at Fordham University and holds an adjunct appointment in the department of psychiatry and behavioral sciences at Memorial Sloan-Kettering Cancer Center. He is a co-principal investigator of Desire for death in terminally ill patients with cancer: Impact of treatment for depression (National Institute for Nursing Research, Grant Number R01 NR-05183). Additionally, he was a co-principal investigator for Desire for death in terminally ill patients with AIDS: Impact of treatment for Depression (National Institute of Mental Health, Grant Number R01 MH-57629). Dr. Rosenfeld was also the principal investigator of The Impact of Depression on End-of-Life Decision Making: A Longitudinal Analysis, a study funded through the American Foundation for Suicide Prevention. He is author of Physician Assisted Suicide and the Right to Die, published by APA Press. Dr. Rosenfeld is a fellow of both the American Academy of Psychology and American Academy of Forensic Sciences, as well as a member of the International Association of Forensic Mental Health Services. He is the associate editor of Supportive and Palliative Care. Dr. Rosenfeld also served on the Advisory Board for this project.

Robert A. Washington, PhD, is co author of Religious and Spiritual Issues at the End of Life.  He is a licensed clinical psychologist and ordained minister who has held various administrative positions in mental health, including Commissioner of Mental Health Services for the District of Columbia. He was former Assistant Professor and Clinical Director of HELPS mental health center at Yale University/Connecticut Mental Health Center, and is Assistant Adjunct Professor, End of Life Care Program, George Washington University School of Medicine and Health Sciences.  For the last 18 years Dr. Washington has specialized in grief counseling—working with those who are ill, dying and/or bereaved, and training others to do likewise.  As a result of this work, Dr. Washington developed a strong interest in the interface of psychology and spirituality.  He retired from mental health administration to pursue a second career in ministry and is currently working as Chaplain and Bereavement Counselor at Montgomery County Hospice in Rockville, MD. Dr. Washington is on the Advisory Board of the Hospice Foundation of America, and also serves on the Advisory Board for this project. 

James L. Werth, Jr., PhD, is author of Law and Ethics Associated with Care at the End of Life and co-author of Religious and Spiritual Issues at the End of Life. In addition, Dr. Werth provided consultation on practical applications for the entire program.  He received his PhD in counseling psychology from Auburn University in 1995 and his Master of Legal Studies from the University of Nebraska-Lincoln in 1999. He served as the American Psychological Association's AIDS Policy Congressional Fellow in 1999-2000, where he worked in the office of Senator Ron Wyden from Oregon on end-of-life issues such as pain management and hospice care.  He has served on all three of the American Psychological Association's end-of-life work groups. Dr. Werth is Professor and Director, PsyD Program, at Radford University.  He has written one book, edited/co-edited three books, edited seven special journal issues, and written over 75 articles and book chapters on end-of-life issues and/or HIV disease.  Dr. Werth also serves on the Advisory Board for this project. 

Karen Byers, PsyD, co-author of Assessment and Treatment of Pain at the End of Life, received her doctorate in School/Community Psychology from Hofstra University, Hempstead, NY. She also worked full-time as a school psychologist while also working part-time at the South Nassau Communities Hospital Mental Health Center in Baldwin, New York.  To facilitate professional growth in the treatment of cancer patients, she spent two years at Memorial Sloan-Kettering Cancer Center in a part-time position in the Psychiatry and Behavioral Sciences Department under the mentorship of Dr. Steven Passik.  During that time she participated in research protocol development and implementation while also providing psychotherapy to cancer patients and families.  She is a co-investigator for cancer-related research in the areas of pain, insomnia in breast cancer patients, and depression screening of lung cancer patients. She has reviewed and edited current articles related to Sleep Disorders for the PDQ Supportive Care Editorial Board of the Department of Health and Human Services, and articles related to social support for the Journal of Psycho-Oncology.  She has received Certificates of Appreciation presented from New York State Office of Mental Health, Nassau County, Project Liberty, and South Nassau Communities Hospital for over 400 hours of service as part of South Nassau’s Behavioral Health Trauma Response Team.  She is a member of the American Psychological Association (APA), New York State Psychological Association (NYSPA), American Psychosocial Oncology Society (APOS), and Association for Behavioral and Cognitive Therapies (ABCT) (formerly AABT).  She has recently returned after several months living abroad in 2007 and 2008 with her husband and continues to work in the field of psycho-oncology.   

eNURSING llc’s Technical Support and Coordination 

David Shuey, BS, is the graphic designer and media specialist for the Internet-based Education on End-of-Life Issues for Mental Health Providers project. His work with Dr. Wilkie extends from 2001, when he worked on TNEEL-NE and TNEEL-SS developing slide media, video, audio, online graphics, and marketing materials. His 11 years of design, promotions, and marketing experience include stints at Seattle's celebrated Intiman Theatre as well as Youth Theatre Northwest. Earlier he worked in Eugene at the ed-tech nonprofit ISTE ("http://www.iste.org/") on the University of Oregon campus, where he also received his BS in Journalism and Sociology. He is currently the graphic designer for eNURSING llc and at the College of Nursing at the University of Illinois at Chicago. He was on leave in for the first half of 2008, traveling and working on volunteer microfinance projects in Africa. 

Laura E. Werling, CWC, served as project coordinator on this project.  She has worked with eNURSING llc as administrative assistant, marketing director, and acting fiscal officer.  Mrs. Werling has worked in religious endeavors for more than 35 years in teaching, training, counseling, leadership and supporting roles.  In addition, she has financial experience working for 14 years with Credit Unions, including as branch manager. 

Diana J. Wilkie, PhD, RN, FAAN, is a co-investigator of the Internet-based Education on End-of-Life Issues for Mental Health Providers and a founder and the Chairman of eNURSING llc.  With Nursing Consult LLC,  eNURSING llc developed, tested, and are marketing PAINReportIt® (http://www.enursingllc.com/), the first computerized pain assessment program for patients to complete themselves. Dr. Wilkie is recognized nationally and internationally for her end-of-life expertise. She was a member of the National Advisory Committee for the Promoting Excellence in End-of-Life Care National Program, and she was a member of the Advisory Panel for ELNEC and the NHPCO/ISIS Clinical practice Improvement Project, all of which are funded by the Robert Wood Johnson Foundation. She consults extensively with groups focused on end-of-life issues and pain research, including in Taiwan where the TNEEL (Toolkit for Nurturing Excellence at End of Life) program she developed is now being adopted nationwide for medical and nursing education.  She also is the Director of the Center for End-of-Life Transition Research at the University of Illinois at Chicago (UIC), the first end-of-life research center funded by the National Institutes of Health. Currently she also is a professor in the Department of Biobehavioral Health Science at UIC. Since 1986, her research has been continuously funded, and her grants total more than $22 million in support of pain and end-of-life research in populations spanning the life cycle, including school-aged children, adolescents, adults, and older adults. In addition, her expertise in computerized, tailored, multimedia intervention research was vital to this project. Dr. Wilkie’s work has resulted in 97 publications and hundreds of invitations to present on pain and end-of-life topics. 

Han Yan, MS, ME, earned a Master of Science in Computer Science from the University of Illinois at Chicago and a Master of Engineering in Chemical Engineering and Computer Simulation from the Chinese Academy of Sciences.  He currently is working on a Master of Business Administration at the University of Illinois at Chicago. He earned his Bachelor's degree from Tsinghua University (Beijing, P.R. China) in Chemical Engineering. He has more than eight years of experience in software development and is certified as a Microsoft Certified Application Developer and Sun Certified Java Programmer. He served as programmer for the Internet-based Education on End-of-Life Issues for Mental Health Providers project. 
 
 

Shiping (Sam) Zong, PhD, is a graduate of the Shanghai Foreign Language Institute, one of the world’s best known linguistic education institutes. He earned his PhD and master’s degree in psychological measurement, statistics and research design from the University of Washington.  He has extensive publications on a variety of topics, including philosopy, history, education and computer application.  Dr. Zong began to do computer programming in 1984, and in China is considered the founding father of computerized clinical simulations for medical education purposes.  He also played leading roles for the development of several national medical education databases, being entrusted by China’s Ministry of Public Health.  In the last 8 years, Dr. Zong has led the programming teams for a dozen programming projects and played major roles in Web course design and instructional design. He is the lead programmer and system analyst for the group.  As the most senior member of eNURSING llc’s programming team, he served as programmer and statistician for the Internet-based Education on End-of-Life Issues for Mental Health Providers study.